Accepting a Life with Chronic Migraines

July of 2017 was the four year marker for the start of my never ending migraine. Four years ago, July of 2013, I was on vacation with my family and got a headache that just didn't want to go away. I assumed I was dehydrated or tired or just annoyed of spending up to 14 hours a day in the car with my family on our cross country road trip, so I didn't think much of it. The weeks went on and it continued still. At that point, my daily pain was at about a 4/10 on the "pain scale" (ranging from 0-10, 0 being no pain and 10 being the worst pain imaginable). I went through three doctors in a few months trying to find the right person for the job of diagnosing my pain. Finally, I found a neurologist who was willing to try everything to figure out what was wrong with me, but by the time I found her, my pain was up to an average of 5/10. She never gave up on me, even when every test she did came back normal, from simple blood tests and medication trials to a lumbar puncture that put me in the hospital overnight. I was starting to think the pain was all in my head... (haha look i made a pun!)
In December of 2014, that doctor sent me to the experts at the UCSF Headache Center, where I talked for two hours about every test we ever did and every medication we ever tried. By this time, my daily pain was at a 6 or 7 out of 10. I knew I couldn't keep going to school, and was considering going on independent study because I barely went as it was. I probably went to two and a half school days a week for the second half of junior year and first half of senior year.

Before the UCSF doctor, I didn't have an answer for the pain. I had a long list of things that I didn't have, but I didn't know the one thing that I did have. After respectfully listening to me for two hours, my doctor told me that I had migraines. I nearly cried at the answer to my prayers, and the next thing she told us was that I would probably benefit from getting a treatment in the hospital. This was pretty scary for my mom and me, but I was ready to put a stop to the pain. I was hoping this would be the thing to cure me of my pain. I had the treatment in January of 2015, and took that month and part of February off of school in order to recover. I spent 5 days in the hospital getting an infusion of the medication through an IV every 8 hours. It was exhausting, painful, boring, and mentally/emotionally draining. It took a month for me to get my strength back, but by the time I recovered, my pain level had decreased! I was down to an average of a 5 or 6 out of 10, which made school, friends, and fun manageable. I was able to graduate from high school with honors and a GPA of 3.7, and even get into my dream school of UC Davis! I had another hospital treatment before I started college, which got me through Fall Quarter and half of Winter Quarter. By the end of Winter Quarter, my average daily pain was at an 8/10. Some days, I was able to go to class, study, and spend a little time with friends. But other days, I had a 9/10 and I could barely get out of bed, let alone bike to class and study for my finals. I ended up getting C's and B's in my classes, which was a drastic change from my straight A's of Fall Quarter. I was disappointed in myself and heartbroken because I knew I wasn't going to be able to do another quarter like that. So, I had to take Spring Quarter off of school. I had an emergency admission to the hospital for the treatment, and instead of having my first week of Spring Quarter (April of 2016) on campus with my best friends, I was in the hospital. The hardest thing about this decision was the 6 months that came afterwards of having little to no contact with my new Davis family. Even though I had a lot of fun times with my family during those 6 months, and I did have visits with my Davis friends, I knew I wasn't where God wanted me to be. I know that God knew I needed the time to heal and rest, but I also knew that Davis was where my heart now belonged.

Also during this time, I fell far from God. I couldn't see Him, and I couldn't understand why He would allow me to go through so much pain. I tried so hard to find Him, but I think I was too angry with Him to truly look. But finally I made it back to Davis and got to start my life again. It was my sophomore year of college, and I was determined to make it the full year. I planned a hospital treatment during my finals week of Fall Quarter so I would have enough resting time afterwards before Winter Quarter, and hopefully I would make it all the way through Spring Quarter. Sophomore year was not an easy one for me. For most of it, I still felt out of place even though I knew I was in the right place. I wasn't close with God, and I didn't know how to fix it. So instead, I fixed everything else that i could. I threw myself into my friendships and schoolwork, and got all A's and B's that year. But I was still angry with God. I couldn't just accept that he would allow me to be in so much pain every day. For the whole year, my pain was an average of 7/10. I had a few days where it was a 5/10, but also days where it was a 9.5/10. I haven't had a day with 0/10 since July of 2013. I was burnt out. I was tired of fighting, but I knew that if I stopped fighting, my life would fall apart. I would fail my classes, drop out of Davis, and have to move back home. So, I kept fighting. Also during this time, in December of 2016, I started seeing the adult doctor at the UCSF headache center. This doctor could continue my hospital treatments and also start a new treatment, Botox injections, in November of 2016. Unfortunately, it would take 9-12 months (3-4 treatments, given every 3 months) before the treatment would kick in, if it was even going to work. Somehow, during Spring Quarter, I realized that I couldn't fight on my own anymore. I started talking to God more and really searching for him in my everyday life. I looked for the good in the pain, and tried to let Him fight my battles for me. Also during Spring Quarter, I took a heavier course load, which was scary. I expected at least one C. Instead, I got straight A's. I also felt more connected to my Catalyst church family, even though I barely went to the Thursday night services and only went to church about twice a month. This summer, my goal was to find God again and continue on my path upwards.

It's no coincidence that my daily pain level didn't get better until I fixed my relationship with God. The second I decided to stop fighting and let God fight my battles for me, my pain eased up. During August, I had two days where I had a pain level of 3/10 that lasted for half of the day. Unfortunately, a few days later, it was back to an 8/10, but I was and am ecstatic for those days of 3/10. I honestly forgot what it's like to not be in pain. Because I have been in pain for four years now, I have an ever stronger pain tolerance. I get shots in my head that I used to almost pass out because of the pain, but now I just squeeze my mom's hand and grit my teeth, and the pain goes away after the shots are over. As of 3 months ago, I have gotten a set of shots in my head every month. The botox is 31 injections, and for the two months in between botox treatments, I get four shots in my head (a greater occipital nerve block) and another treatment of lidocaine in the middle of my head through catheters in my nose (a sphenopalatine ganglion nerve block). While my daily pain is still a 6/10, this is extremely manageable for me. My life the past two months has been so much fuller because of this and because of my strengthened relationship with God. While I am thrilled that my pain is trending downward, I am also terrified. I am scared of getting attached to this lower pain level, then that it will start getting worse again. Honestly, that would break my heart. It's strange because even though I'm not afraid of pain because I experience it every day, I am also terrified of it. I am afraid of it controlling my life and dragging me down and away from God again. I am afraid of it blinding me and keeping me from where God wants me to be. I am also afraid of my fear controlling my life. But through the fear, I hear God telling me "to those with fearful hearts, 'Be strong, do not fear; your God will come, he will come with vengeance; with divine retribution he will come to save you.'" Isaiah 35:4

You're probably wondering why I am repeating my whole story for you, and this is why... Looking back, I see that instead of this pain making me hate God and tearing me from His side, it has actually strengthened my relationship with Him. It has also given me more confidence and allowed me to form deep connections with those in my life. Also, as soon as I turned to God and gave up fighting the pain all on my own, my pain eased, even though it only lasted two days. For those of you with chronic pain, you know how amazing and rare two good days in a row are. They are the light in the dark, your hope for a better future.

My new goal for this quarter is to be able to release my fears and give them to God. I know that my family, friends, and Catalyst family in Christ are here for me, but I have this tendency of dealing with things on my own and keeping the burden all on me. Even though I know God says that if I give him my burdens, I will get rest in return, and my burden will be light, I am afraid to relinquish what little control I have. "Come to me, all you who are weary and burdened, and I will give you rest... For my yoke is easy and my burden is light." Matthew 11:28-30.

I want to take this time to thank each and every one of you who prays for me and keeps me in your hearts and minds. I want to thank my family and friends for being there for me through the good times and the bad. Words cannot describe how much I appreciate you. I thank God for you every day.

Love always,

Sierra

3:20 AM

So since it's 3:20 AM right now, I'll keep it short and sweet.
I've realized why my life feels so surreal here at Davis. It's something beyond just the fact that it's a big change for me. Literally, just now, I realized that I can't accept that this is actually my life. My life is so good right now, and it has been good for seven straight weeks now. That is a record. Up until two months ago, 3 days of happiness in a row was a HUGE deal for me. Even now that I've had SEVEN WEEKS of goodness, I am waiting for the other shoe to drop, constantly preparing myself for the worst. I'm still not 100% positive that I will finish this quarter. The little voice in the back of my head keeps reminding me that good doesn't last forever, especially not in my experiences, so I should take what I've got and expect nothing more. Because of this, I feel like I'm watching my life happen instead of living it, even though I am really really really enjoying my time here! I just wish I could get that little voice in the back of my head to shut up so I could live my life, but even if that was possible, it would not be a smart idea for me. That little voice has saved me more times than I can count in the past week alone. If I did not listen to the little voice, I would stay out too late with my friends, study less, eat too much junk food, etc. other bad habits, all of which lead to more pain. It's ironic that the thing that keeps me healthy(ish) is also holding me back... but I guess some things come hand in hand with others.
I do have a (hopefully) relative point to sharing this middle-of-the-night-realization that I've just had with you. Now that I've realized my problem, why I feel like I'm watching my life happen instead of living it, I can start to deal with it. Of course, it's not an easy fix, and I don't know how to do it now, let alone on my own, but I do have some place to start. I have a square one, where before I didn't even have that. I just had a feeling like something was missing from my life. I am proud to say that for once, I have been praying to God about this. I did not forget to talk to God about this particular problem, and I think that is in large part because of my blog. Writing on here reminds me to step out of my own little world and let God in, and I hope that by sharing my experiences and middle-of-the-night-realizations with you that I can remind you to let God in as well. So, goodnight for now!
"'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future.'"
Jeremiah 29:11
Love always,
Sierra

The Start of Something New

So apparently I'm starting to use a recurring theme of referencing a weird obsession of mine... First country music, then Spirit, and now High School Musical. I guess it does go along with my previous references to other cheesy feel good things like Hallmark movies, since High School Musical is a cheesy blast from the past, especially with "The Start of Something New" being the first song of the movie series. I like cheesy movies, lyrics, stories, etc. because they always have a predictably happy ending. Life, however, is never predictable and seems to rarely have happy endings, so I guess I like the cheesy things because they show me a glimpse of what life would look like if everything ended nicely wrapped up in a happily ever after ending. Movies end with life-changing discoveries... the guy gets the girl, mother and daughter are on good terms again, and the evil ones are vanquished. Life also ends with a discovery, but unlike movies, the best memories in life are made during the times of discovering, not the actual discovery.
Today, I started a photo album on facebook to record my first year of college, and I titled it "UC Davis: Year One". As I was choosing pictures for and editing the album, it hit me that I'm going to be at Davis for four more years. It already feels like a lifetime that I've spent there, but it's only been six weeks. I've only been a part of my church group, Catalyst, for five weeks. Coming home this weekend, I'm having this odd feeling that I just dreamt about the past five weeks, and that I am coming to the end of my dream. In reality, my dream is just beginning. I'm at the start of something new: something awe-inspiringly, life-changingly, wonderfully new. It's amazing how just a change in perspective can change a person's whole outlook on life. Instead of bracing myself for the end of this season of life, I can be fully present in the moments, taking pleasure in the small things as well as the large things that I encounter. I encourage you to look at your life as the start of something new instead of the end of something old, because life does not end happily. Life ends with pain and loss. So, when we think about endings in our life, we expect pain and loss to come from them. Instead of seeing the ends, see the beginnings, because life begins with pure joy. When we are first brought into the world, there is a party in Heaven, because another child of God is born. On the wall of my bedroom, I have a patchwork that my grandma made for me when I was just a baby that simply says, "God danced the day you were born", and every time I look at that, I am reminded of the joy that life is meant to bring us. Too often, we are caught up in the pain and suffering of life and forget to see the joy in it. Every day is a chance to see the start of something new.
"He who was seated on the throne said, 'I am making all things new! Write this down, for these words are trustworthy and true.'"
Revelation 21:5
Love always,
Sierra

Christaholics Anonymous

So tonight I've just got a short post, but I had this thought and just couldn't NOT share it with you! Tonight at my weekly freshman girls small group, we started sharing our testimonies with the group, and so I found myself in the bathroom afterwards washing my face and brushing my teeth, thinking about my own testimony. I thought about how we shared intimate details with each other, immediately trusting one another to take it seriously and without judgment, also not repeating any unnecessary details with anyone outside of the group. Thinking about it this way, it reminded me of the structure of addiction support group meetings, and what addiction means. The merriam-webster.com definition of "addict" is this: "to devote or surrender (oneself) to something habitually or obsessively." The majority of addictions mentioned nowadays are harmful to the well being of the addict, but I think that theoretically, it is possible to have a healthy addiction. Realistically, the only healthy addiction I can think of is an addiction to Christ. An addiction becomes something that you can't control, a passion that directs your life, and my passion for Christ has become uncontrollable since this past weekend. I am on a high right now, a "God high" of sorts. Going on a retreat with a group of devoted Christians does that to you. It changes you completely, and shapes you for the better. As long as your heart is in it and you are ready to accept God's direction, you will leave with a renewed passion for seeking Christ. An addiction to Christ is the only addiction that provides healing instead of causing pain. While away on the retreat, I also reconsidered the meaning of healing, and came up with my own way of defining it. Healing doesn't mean you return to the exact shape you were before, but instead you adapt and learn to live with the scars and recognize that they are closed wounds. Scars don't continue causing you pain, they are just a visual, physical reminder of that pain and how you have overcome it. With an addiction to Christ, a support group is just as necessary as any other addiction, but the parameters of the group will be a little different. A Christ support group encourages you in your addiction and walks with you as it grows stronger and starts to control your life. The healthiest relationship with God is one that is all-encompassing and resilient. That is the type of relationship we should be striving for. I highly encourage you to take every opportunity you have to go on a retreat of any sort with your support group, whether it's going out to ice cream or spending the weekend in the mountains. 
"In all this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that the proven genuineness of your faith-of greater worth than gold-may result in praise,, glory and honor when Jesus Christ is revealed. Though you have not seen him, you love him, you believe in him and are filled with an inexpressible and glorious joy."
1 Peter 1:6-9
Love always,
Sierra

Is this real life?

There's a little inside joke minor humor for you there with this title... Anyone remember the funny video roaming around the internet a few years back with the little boy who was loopy from getting his tooth pulled out and he asked, "Is this real life?" Even though I'm not loopy on laughing gas, I've found myself asking this question fairly often in this transition from high school to college life. This weekend, I had this thought multiple times, but in an amazing, uplifting sort of way. When I think about the past few years of my life, I can't remember a time when I was happy for more than about a week at a time. I've been at UC Davis for a month now, and I can honestly say that I have been happy for almost the whole time. Of course I'm not happy 24/7, that's unrealistic, but aside from a few bad days here and there, my heart has been filled with joy and satisfaction. I know why I'm so happy, too: I finally learned how to let go and let God. I honestly have no idea what in particular I've done differently for this past month, but I do know that whatever I'm doing, it's good. I've been able to step aside and let God lead my life for a change, and it has been wonderful.
I have this really bad habit of trying to do everything on my own, and on top of that, I'm extremely stubborn about it. For example, this weekend I went on a retreat with my college church group! We went to the Tahoe area and stayed in a church member's cabin! Well I guess technically it was a cabin, but "cabin" makes it sound small. This place was not small. We fit 60 college students in it for an entire weekend. Yes. 60. Anyways, on Saturday, we went for a hike. It was an optional hike, but the majority of the group ended up going. At first, I didn't think that I was going to go along, but I felt a little nudge from God to go. I gave in, and found myself on a beautiful hike. For some of us, the hike was a fairly easy few miles on a switchback trail up the mountain. For others, it was trekking through the woods, climbing up the rocks, and "parcore-ing" it up the mountain ("parcore" is jumping on rocks and doing crazy life-threatening stuff like that just for the heck of it). I was part of the group that went on the trail, of course, but that trail was not easy at all for me. It was actually the most difficult thing I've done since before I went to the hospital. As I was on the hike, I had multiple opportunities to turn around and only go part of the way, at which points I stopped and actually considered the possibility. This, I think, is the difference between the me now and the me a few months ago. Realistically, I knew I was not going to turn back early. I knew I was going to finish that hike no matter what. However, I used to just go with my gut and not listen to God's input. This got me in quite a few rough patches over time... Typically, after a huge adventure such as the hike, I come home and crash for a few days. Literally crash, like my headache spikes to a constant 9 out of 10, my body is weak and lightheaded, and I am completely exhausted for at least 2 days. This time feels different, though. I'm still exhausted, a little weak, and with a little worse headache than I had before, but it doesn't feel like a crash. I think this is because when I had the opportunity to turn back on the hike, I paused and asked God for his advice. God told me that if I continued, I would be sore, but it would be worth it. He also told me that if I turned back, I would enjoy the quiet time and meet some new people in Catalyst. (Sidenote: When I talk about God "telling me" something or "speaking to me," I don't mean that I hear a loud booming voice saying my name and speaking to me. It's hard to describe, but basically, when God speaks to me, I get a feeling. A thought pops into my head, and I have a feeling in the pit of my stomach that tells me what the thought means. God speaks to everyone in different ways, and often times it is really hard to interpret what He is saying to us. Don't worry if you haven't heard God's voice yet. You actually have heard his voice before, but you just haven't noticed it before, which is completely okay. I didn't learn how to understand God's words until very recently, so don't panic! It will come in time.) Now, back to my story! So, given these choices, I decided to be stubborn and push through the pain, exhaustion, and dizziness for the sense of accomplishment I would feel at the end. I also stuck with the hike because I absolutely LOVE being in nature. It is my favorite visual reminder of God's artistry!
I guess my point of all this is that because I followed God's lead this weekend, He rewarded me by helping me recover more easily from the adventure. God works in mysterious ways like this. He gives us free will, for reasons I will never understand, but He still has a plan for us. He still knows our desires and values them, so He respects them, and gives you opportunities to expand your horizons and deepen your relationship with Him. Along with less pain, He also rewarded me with an AMAZING weekend. There is so much I want to share with you all, but if I were to share all of it I would be typing for days... So I'll share my favorite moments. For those of you who have been on a church retreat before, you know how aware you are of God's presence the entire time. For those of you who haven't, I'll happily explain it to you. Imagine a room filled with people that you have gotten to know and love, discovering some of their quirks, strengths, weaknesses, and laughing with them along the way. Now imagine every single one of them singing their hearts out praising God. When this happens, the Holy Spirit emanates from each person's soul and fills the spaces of the entire room. It felt to me like we were standing in a sea of love- God's love, my love, their love, our love. In those moments, all I can do is smile, lift my hands, and praise God. I could have worshiped with those people all day and been completely content.
I'd like to end today's post with a blessing that we ended our retreat with: Praise God from whom all blessings flow. Praise Him, all creatures here below. Praise Him above ye heavenly hosts. Praise Father, Son, and Holy Ghost. Amen.
Love always,
Sierra

Surrealism

I'm having yet another surreal moment right now. I'm sitting in Starbucks on campus listening to music and organizing my schedule, when I realize that I am the college student. I am here, living on my own, going to college at my dream school, and I can't help but feel blessed despite the hardships. There was a time that I doubted that I would be able to go to college, let alone move away from home, yet here I am! Ooh that just reminded me of a song from one of my favorite movies!! Spirit, Stallion of the Cimarron. I love that movie because it is all about horses and their personalities and warm hearts for humans, but also because of the music. The music just happens to be co-written by Bryan Adams and Hans Zimmer, so you know, no big deal... just a fairly successful 80's rockstar and the composer of movies such as the Pirates of the Caribbean trilogy. Of course, when I was little I had no idea who these people were, I just liked the music, but it's cool to make that connection now. Anyways... The song "Here I Am" in Spirit has lyrics of: "Here I am, this is me. There's nowhere else on earth I'd rather be. It's a new world, it's a new start, it's a life with the beating of a young heart, it's a new place, it's a new land, and it's waiting for me. Here I am. Here we are, we've just begun and after all this time my time has come. Here we are, still going strong. Right here in the place where we belong." I love it when normal songs like this make me think of God. This song was written to be about a horse becoming the leader of a herd, and the responsibilities that come with being the leader, yet 18 year old me hears God's voice in it. It's always exciting to see the different ways God speaks to us, whether it's a song that's stuck in your head or a person or situation in your life. Once you start looking, you see God everywhere. You see him in both the beauty and pain, which is a double edged sword.
It's hard to think about God in relation to pain. Me with my math brain, I think of it like an equation relating God and pain, like they are opposites to one another: God/pain (God divided by pain). I've come up with a new relationship now, though: God=Pain. I don't mean God is the same thing as pain, I mean God is proportional to pain. If you have more pain in your life, God reaches out even further to you. He does not do this because the ones with pain are His favorites, but because He gives everybody equal opportunity to follow Him. He understands that those of us with pain have less to give, and He's okay with that. Many of us, including myself, investigate this and wonder, if God can support us when we have more pain, why does He not also take some of our pain away? I don't have a definitive answer for this one, guys. It's an age-old question that I don't think will ever be answered on Earth, however I can share with you my opinion of the matter. If we lived in a perfect world, everybody would be praising God of their own free will, but a perfect world does not and will never exist. The only time that there ever has existed a perfect world was with the Garden of Eden, but that world was corrupted by the same thing that corrupts our world: sin. I see sin and Satan as synonymous because Satan encourages sin, just as I see God and love as synonymous because God encourages love. I believe that God has a plan for each and every one of our lives, and we may choose to follow it or not, but either way, His plan will be corrupted by sin. Fortunately, God accounts for this and makes it possible for us to survive and thrive. Satan makes life difficult, but God makes life possible. Because we have free will, God's plan does not always shine through every single person's life, and because we are human, most of the time we will not see God's plan. We might only see the suffering left in its wake, and when that is the case, it is time for us to take comfort in God's embrace. You could try to understand every aspect of the plan, but then you would waste your whole life looking for something that, simply by having faith, in the end you will find: Heaven.
"But the wisdom that comes from heaven is first of all pure; then peace-loving, considerate, submissive, full of mercy and good fruit, impartial and sincere."
James 3:17
Love always,
Sierra

A God-Filled Life

So you know how you have those moments where all of a sudden, you're completely aware of God's presence? You feel him in the people next to you, in the music, and He even fills in the nooks and crannies! In that moment, you hear God's voice in your head telling you, "This is where you are meant to be. This moment. These people. These experiences. You are my perfect child, following my perfect plan." Your heart beams with happiness and love, and you breathe in the Holy Spirit. Since I have arrived at UC Davis, God has blessed me with these moments of awakening every single day, and that is how I know that I am where I am meant to be. The exhaustion, pain, stress, and worry are all worth it, because for the first time in years, happiness is overflowing in my life. I'm not saying that I have been unhappy for the past three years, but I did not see my life as the blessing it truly is. When pain is a daily part of your life, it takes a lot of effort to look past it and see the good things. I have found that when I am busy doing things I choose to do, I am happy, whether I am choosing to do church, school, hang outs with friends, etc. If I am choosing to spend my energy on it, I am determined to enjoy it. Part of the struggle of high school was that it was forced on me. I had no choice but to spend six hours of my day at school (on the days I could make it to school at least). Since I am stubborn and always find little ways to do everything my own way, I "rebelled" against the forced six hours of school by choosing to do AP classes. Looking back, I see that my main motivation for AP classes was God. He told me to push myself because He knew I could succeed, and now I have. Okay so I'm about to say something really cheesy that I hated hearing, but now I see that it is true. Ready? Here goes: there is a point to your suffering. Good will come of it. It SUCKS to suffer, but you truly will become a better person because of it. I feel like I can tell you this now because I'm not done with my suffering, so I'm in the same boat you are. The only difference is that I have arrived at the point in my life where I am starting to see the good things that can and will come from my headaches. College really does change you. For the first time ever, I am in charge of my own life, and there are lots of things that I could do with that. I expected myself to take charge the second I got the chance, but I felt myself holding back. I was in a holding pattern until I found my new community. Coming to Davis, I knew I wanted to start off early with a church group. I planned on trying a different youth group every night of the first week, but then all of a sudden it was Friday and I hadn't been to one. So, I told myself that I was going to go to church on Sunday, whatever church I could get to. The thing was that I needed a ride to church, so I literally typed "UC Davis rides to church" into Google, and once I vetted the website, emailed them for a ride. It worked out perfectly, and I knew the second I sat in the car that I was where I was meant to be. I saw God in the people, felt the Holy Spirit in the church, and felt the love and open arms of the congregation. Every single time I have been with the people of the youth group, I have felt God with us. I have felt God more in the past three weeks alone than I have in the past three months. This is why I can give you cheesy advice, because God has proven it to be true. God has proven to me that my pain will continue bringing good into my life. I can tell you firsthand that God will prove it to you as well. Your pain will bring good. The pain will still be pain, and it will still suck, but God will also still be with you every step of the way. All He needs you to do is accept His help. Literally, he is just waiting for you to accept him. That is ALL you need to do. He will do the rest. And I can promise you that it will be worth it.
"If you confess with your mouth Jesus as Lord, and believe in your heart that God raised Him from the dead, you will be saved."
Romans 10:9
Love always,
Sierra

Please Set Goals

Well, contrary to my own belief as well as popular belief, it is possible to get yourself out of a rut. For most of the summer actually, I have been biding my time waiting for better opportunities to come along, from a lower pain level to going away to college. Unfortunately, biding my time was not as enjoyable as I expected it to be, so after a few months of it, my body as well as my mind was stuck in a rut routine of doing nothing. Thankfully though, God is on my side, so I am slowly building up my strength to be ready to go to UC Davis in a few weeks! 15 days until move in day, to be exact. It's amazing how some sort of goal can really change your perspective on the present. My goal is to be ready physically, mentally, and emotionally to go to Davis. Davis has been my goal for the past two years, and now that I am finally merely days from achieving it, I am acquiring some new goals. Even though it sounds kind of crazy to be making new goals before achieving my current ones, it keeps me on top of my game. I'm sure not all people are like me, but everybody has that one thing that makes them tick, keeps them motivated even in the slowest, most boring times of their lives. Hopefully, this past summer will have been my slowest, most boring time of my life because that means that I am at least going to enjoy my next few months! However, even if you aren't as keen on setting goals for yourself, it is still a smart thing to do. Having set goals, if they are positively realistic, will give you motivation for the important things in life. I'm not saying that you need to sit down with a pen and legal pad and write down your goals for life, love, happiness, houses, etc., or even make any kind of record of your goals, but I am merely suggesting that you record your goal in your mind. Right about now, I'm sure some of you are wondering why you should take life advice from an eighteen year old girl with migraines, and frankly, I'm wondering that myself. Logically, I don't know why God wants me to keep this blog, because I have not even lived through half of my lifespan, yet I am giving others tips on how to live a long happy life. I do know, however, that if I followed every single one of my logical thoughts, I would not still be seeing my doctor, and I most definitely would not have a relationship with God. There is a time in your life for logic, a time for faith, and a time to combine them. When you set goals for yourself, the goal needs to be thought of through a logical method of thinking, but you also need to have faith that God will give you grace to make some mistakes along the way. One of the mistakes I often make with goals is that I expect myself to accomplish them quickly and easily, no matter how unattainable they may seem. I expect a lot from myself, more than I am capable of, so the person I disappoint most in my life is myself. Again, thinking logically, I should just have lower expectations of myself right? Yeah, no... it's just not that easy for me. The thing is, everybody is unique. None of you is going to completely relate to every single thing I post on this blog, but hopefully all of you will be able to relate to at least a single thing on this blog, and I guess that is the reason why I write to you. God works in mysterious ways. Have faith and trust that God will guide you in every step of the way when setting goals for yourself. Most importantly, set your goals for God's timeline, not your own. If you try to rush or drag on your life, you could miss the best parts of it. God's timeline is perfection, even though we cannot see the whole thing.
"Then the Lord said to me, 'Write my answer plainly on tablets, so that a runner can carry the correct message to others. This vision is for a future time. It describes the end, and it will be fulfilled. If it seems slow in coming, wait patiently, for it will surely take place. It will not be delayed.'"
Habakkuk 2:2-3
Love always,
Sierra

So Now What?

Sorry for the long time between my last somewhat disturbing post and this one, but I needed some time to process the results of the doctor appointment. To make a long story short, it has been confirmed that the six day hospital treatment did not work this time. I say this time because seven months ago, it did work, and my doctor said that there's a possibility that if I tried it again sometime in the future, it would work. I am definitely not planning on getting the treatment anytime soon, so that left me wondering what comes next. When I asked my doctor this, I expected another drastic treatment to become part of the discussion, but instead, she prescribed me a new daily medicine. I have tried lots of different kinds of daily medicines, and so far none of them has made a significant difference in my daily pain level. So, when this was the only suggestion, I was and still am a little disappointed. Even though realistically, I know that there is no "cure-all" treatment or medicine, but a small part of me was still hoping for one on the eve of the appointment. Since this disappointment was the only feeling I felt immediately after the appointment, I cried for a good part of the drive home. Remember how I was talking about stages of grief? Well, I felt grief after the appointment, and I have been dealing with it in some mini-stages of my own. The first one, the feeling of intense disappointment, anger, and helplessness, lasted for about two days after the appointment. The first stage of my grief was gone when I woke up on Sunday morning. I woke raring to go, determined to have a good day: I made breakfast with my mom, cleaned my room, went out to lunch with a good friend, and spent some quality time with my family. This burned me out, so I spent the rest of the day relaxing. On Monday, yesterday, I woke lethargic and sore, with not a lot of emotional energy. My "migraine-brain" immediately expected to feel this way for a couple days, and on I went to the next stage of my grieving: the pain of the loss of the future I expected. Luckily, this only lasted for a day. I don't know how or why it only lasted a day, but I am grateful, because the only feeling I had during the next stage was depression. I won't go into the details, and it wasn't extreme depression like you should be concerned for my well-being, but the temporary depression that everybody feels when grieving the loss of something or someone important. So that brings us to today, Tuesday. I had a counseling appointment today, and God prepared me for it. This morning I woke up refreshed. I did not wake up with less pain than yesterday, but with a different mindset. Instead of seeing the future I lost, I saw the reality. I am going to be stuck with this migraine that I have right now for the near to possibly distant future. I woke up ready to strategize, plan out a realistic future for my college time. I am planning on meeting with the student disabilities center and the Dean's Office at UC Davis next week to discuss the details about my accommodations, considering changing my schedule, and actively thinking about other ways to make me successful at Davis. By "successful," I don't necessarily mean "get straight A's," but I want to have the ability to do the best that I can and prevent any hindrances that could possibly stop me from being successful. (If I do get straight A's, that would be awesome though.) Right now, I am in a stage of acceptance and transformation. I am accepting the fact that my pain level might not get better for college. I am changing the mindset I had for college and everything that goes with it. I am communicating as best as I can with my family, friends, and health advisors. I am working to build a good future for myself. However, I am not doing any of this alone. God is with me. God is on my side. God is holding me up. God is guiding me. God loves me.
I mentioned in my last post that I did not feel God with me, and I am ecstatic to say that that feeling did not last. The first time I felt God again was with my friend on Sunday. Since I am not a normal teenager, I cannot be a normal friend to all the friends who are great friends to me, and I often feel guilty about that. I also feel left out when I can't go to a hang out, whether I'm invited or not or a trip to the beach versus to the ice cream shop. My friend Shannon and I had planned to hang out earlier last week, and twice we had to reschedule, ending up having lunch on Sunday together. I felt guilty about rescheduling and not being a good friend, but being with Shannon, that guilt fell away. Shannon has this innate ability to light up my perspective just in a two hour lunch "date." I have been friends with her for practically my whole life, and she and I are very alike. We go to the same church, have similar family situations, and have similar views and beliefs about school, relationships, faith, and life in general. My point about all of this is that God shined His light through Shannon on Sunday. He was able to speak to me through her in a time when I did not even expect it. Now, looking back, I can see that God was pushing me towards spending time with Shannon, and outside forces were resisting. Not only was I reminded in the moment with Shannon that God loves me, but I was reminded that even though I could not feel Him before, He really was with me. I strayed away from his path, but I could never stray away from his presence. I encourage you to try to stop and look at your life and look for moments and situations like mine. Moments when it would be easier to stay in your safe bubble, but you have the opportunity to change it. Don't choose the easy path. Even if you can only try, just try. Make the effort when I didn't. I could have saved myself days of emotional pain had I spent some of my time and energy with Shannon sooner.
Now, I have a message for you all. It took me a while to listen to it, and I probably will have to hear it again, but here is a reminder for you. God is with you. God is on your side. God is holding you up. God is guiding you. God loves you. GOD LOVES US. I could write that 1,000,000,000,000,000 times and still not accurately express just how much God loves us all. I'm going to do my best not to ever forget that, and I hope you can too.

"No, in all these things we are more than conquerors through him who loved us. For I am sure that neither death nor life, nor angels nor demons, nor things present nor the future, nor powers, nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord."

Romans 8:37-39

Love always,
Sierra

I'm Dreaming

I think that I should reiterate my goals for this blog. I do not write for sympathy or to complain about my problems. I love that you pray for me, care about me and connect with me, but I'm not asking for you to send me notes of sympathy. I appreciate it and am not telling you not to do it, I just want to make sure that it's clear that it is not my intention. I do not mean for this blog to be about me. Yes, I am sharing MY own experiences, but not only for my own benefit. This blog I s helping me to express my feelings, but that is a "side effect" of my cause. 

Now onto the fun!! I am currently in Wisconsin. Why am I in the land of cheese you may ask? Because I have tons of family here. I love family. It is the best thing in the world. Family does not only apply to your "blood brothers," but also to those who love you and make sacrifices for you. I don't mean sacrifice their life or jump in front of a bullet for you, but when you are lonely, hurting, depressed, or just looking for some fun, family is standing right beside you. God is a part of our family as well. God is the perfect dad. He does not overreact about your boy troubles or you not doing the dishes, but He does give you advice and love you as his baby girl or baby boy. He also sees your dreams, and works with you to make them come true. He understands your deepest fears and desires, and He supports you unconditionally in your endeavors. Every time I come to Wisconsin, I love it more. I love the random patches of woods around the crop fields. I love the picket fences and the animals, particularly the horses, behind them. I love the atmosphere of open air, the small towns where everybody knows everybody. I love that my family lives in an area that I love visiting. When I am upset, I often dream of the life I want when I'm older. I've been doing this since I was old enough to understand the concept of life. Currently, my dream is to become a doctor, form a family, retire to a horse farm, and live to see my great grandkids. Visiting the Midwest always reminds me why I love the country so much. Being here shows me how hard some people work just to put food on the table, and how they never complain about it either. People like that are people I want my kids to grow up around.

The other day, I watched a movie called "Unconditional." It was about a woman whose kindhearted husband was killed in a robbery and her steady decline after his passing. She almost committed suicide, but through the help of her childhood friend and her experiences with people who have less opportunity than her. There are many good quotes in the movie, and this one relates to my life really well, "I used to dream of telling stories, but I never dreamed that mine would end up like this." I had big dreams for my life before the migraines came along. I was going to take as many AP courses as possible, work as hard as I could, and get all A's. This sounds conceited, but that was a realistic goal for me at the time. I had many dreams, and not one of them involved migraines. I always thought that I'm the only person I know who had an opportunity taken from them because mine was the worst, but that's not true. Nobody's life ends up exactly how they wants it to, but it ends up where God wants it to. Seemingly trivial things end up making a world of difference because they are guided by God's hand. 

If you have never visited anywhere other than your hometown, I highly encourage some adventure. I'm not saying you should hop on a plane to Greece for two months, but find a place that makes you feel happy and safe, then find another. The journey to get you there will be just as important as the places you go. Here's another good quote from "Unconditional," "It ain't a dead end if it takes you where you needed to go." So I guess my headaches are taking me to a place I need to go, and God is guiding me the whole way there. The same goes for each one of you. If you see a dead end up ahead, go all the way up to it before you turn around, because that is where the beauty of life lies. 

"And after you have suffered a little while, the God of all grace, who has called you to his eternal glory in Christ, will himself restore, confirm, strengthen, and establish you."

1 Peter 5:10

Love always,

Sierra

Reactions

So I'm the kind of person to see a problem in my life and try to fix it. I usually end up trying so hard to fix it that once it's no longer a problem, I don't enjoy it cause I'm just exhausted. This is what I do and I've accepted that because I can handle it. I can handle it because it's in my control. When it comes down to it, I choose how I react to things. For a long time, I only thought it was possible to choose your physical actions like cleaning your room, talking to a troubled friend, doing your homework, etc. What I have since learned is that you have the ability to control every single reaction that you have, the key word there being "ability." I also have the ability to train for a triathlon or learn to speak German, but I can't even run a mile without crying or say anything other than thank you, which is "danke shun" by the way, (and I probably spelled it wrong.) The one thing I don't have the ability to do is live without migraines. My body physically cannot function without them. I like to blame myself for the troubles in my life, and so I say to myself, "if only you had tried harder..." "You should have stopped this before it got too far..." Blah blah blah. Another thing I've accepted about myself. Because I've accepted this, I don't know how to accept the migraines, that there is literally nothing I could have ever done that would have prevented the pain I have felt, am feeling, and will continue to feel for the rest of my life. I still continue to fight that fact. I don't want to accept that I'm going to have to deal with this shit for the rest of my life. (Excuse my language, I never ever cuss unless the situation is worthy, and I think this situation definitely is worthy of a little swearing.) Even though I am surrounded by wonderful people who love me and will do anything to help me, I often feel alone. Nobody can share this burden with me. My dad is a goofy guy, and to cheer me up when my head is really bad, he comes over to me, puts his hand on my head, and makes a suction noise with his mouth, then he puts his hand on his own head and says "I sucked the pain out of your head and put it in mine." While this doesn't physically work, it usually emotionally works a little bit because it's a reminder that I'm not alone. Here comes another cheesy feel good yet valid line: You are not alone. You are never alone, even though it may feel like you are. Even when you cannot feel Him, God is there. 

Usually, when you can't feel God, it's because you've lost a little bit of your spirit. You've given up, whether momentarily or permanently, so you are more susceptible to negative thoughts. In that negative moment, I'm sorry to say this, but you probably are not going to have the will to make yourself feel better. In those moments, God sends a messenger to comfort you. Today, I'm not going to talk about the rock bottom part of the process of life. Instead, I'm going to talk about the path towards rock bottom and how you can lead yourself back uphill instead of downhill. Too many metaphors for you..? In simple terms, I'm going to introduce you to the process your brain goes through when it reacts to something in your life. To start off, I'll use an example. In the past two to three months, my headache has been completely unpredictable and has not reached a pain level lower than a 6. This week or next week, the medicine from the hospital should be kicking in and starting to make my pain more manageable a little bit at a time. Two days ago, my pain was all over the place for the whole day, ranging from a 6 to a 9. The first time the pain lowered to a 6, I was excited because I hoped it meant the medicine was finally working. When it jumped back up to an 8 not long later, I thought of it as a fluke. As the day went on and the pain kept fluctuating, I stopped getting excited when the pain was less and didn't expect it to last. We'll call this feeling 1. Feeling 1 is the automatic reaction my brain had to the day. That automatic feeling, you can't control, but every reactionary feeling after that, you can. Feeling 1 brought up Feeling 2, which was frustration because the pain wasn't better. When I noticed this feeling, I stopped and said to myself, "now wait a minute. A week ago you didn't even have moments where your pain was a 6. A 6 is a blessing. Be thankful." I have been practicing for a while now, so feeling 2 is the healthy response to feeling 1. 6 months ago, my feeling 2 would have still been frustration, but that frustration would've led to sadness, anger, depression, annoyance, the list goes on and on until I ended up on the couch with an ice pack crying while watching tangled. 

Trying to retrain your brain to be able to stop and think about your emotions is hard work. I've been at it for 6 months and I still kinda suck at it. All that you need to do to start is notice how you react to things. You don't even have to think about the emotions, just look at them, acknowledge them, and see what comes next. Also, you don't have to have an illness or injury to retrain your brain. Everybody's brain could use a little TLC. 

“So that you may live... bearing fruit in every good work, growing in the knowledge of God, being strengthened with all power according to his glorious might so that you may have great endurance and patience, and giving joyful thanks to the Father, who has qualified you to share in the inheritance of his holy people in the kingdom of light.”

Colossians 1:10-12 NIV

Love always,

Sierra

P.S. If you ever need help with your brain, God is an expert on the brain. I mean, he did create it and all... ;)

Disney One-Liners

I decided to make this post a little different than my others. Instead of bible verses, I will be using Disney quotes. Wisdom and inspiration can come from the most random things in life, and for me, Disney is a bright example of that.
"The past can hurt, but the way I see it, you can either run from it or learn from it." -Rafiki
Yesterday, I saw my counselor (we'll call her Si) for the first time since the hospital. That woman and I are like the same person in different bodies. She is a nerd, talks a lot, and is passionate about her work... Sound like anyone we know? Well, a few months ago, Si found a good way of categorizing the emotional side effects of having chronic migraines. My migraine causes me grief. Not grief like troubles, but grief like the feeling you have when a loved one dies. My old self died when my migraine started. Typically, there are stages of grief, and healthy grieving is moving slowly but steadily onward through these stages. I will use Elizabeth Ross's "stages" of grief:
1. denial
2. anger
3. bargaining
4. depression
5. acceptance
When dealing with a loss of a person, a job, a pet, etc., healthy grieving is going through the stages one by one, only moving forward. With my grief, I have gone through each stage multiple times, which would be considered unhealthy if I was grieving like most people. Grief typically describes the feeling that you get as a result of one singular event. If you look at the past two years and next few years to come as a singular event, then I should go through the stages of grief when my daily migraine ends. This seems logical, right?... Well it also brings up the question of how I should be feeling in the five years the broadly singular event is occurring. I've decided that nothing about my situation can be considered normal. I cannot live like a normal person. I cannot be a normal person, so why do I feel the need to grieve like a normal person? Probably because it is just human nature, but that still doesn't help me know how to grieve in a healthy way. I guess I should say why I need to grieve healthily, huh? Well the way I see it is every day I have a giant unhealthy problem in my life, so being unhealthy in any other area of my life would just make life all the more difficult. You may also be wondering why I am sharing this with all of you, how this could relate to your life. All too often, people try to put themselves in the same category as others because nobody likes to be alone, particularly in tough situations. Even though you may not have migraines, physical pain, or pain every day, you do not have to grieve like everybody else. However, if you have suffered a singular loss, do try to stay in the norm, for your own sake.
"I never look back, darling. It distracts from the now." -Edna Mode
Just like Rafiki, Edna understands the importance of living in the present. Sometimes, I do not want to live in the present, because in the present moment, I am in a lot of pain. I try to distract myself, usually by watching tv, talking with friends and family, or listening to music. These distractions help me continue living in the present. When I am not easily distracted because of the higher level of pain, I tend to live in the past. I think of where I could be if I hadn't gotten migraines and start wishing my life was different. Wishing your life was different does not actually change anything... In fact, it makes the present moment worse. When this happens, and I head even further down the downwards spiral, I move to the depression stage. I am constantly moving between the stages of grief, and living in the past pushes me in a negative direction. For me, healthy grieving is steadily moving through the stages, but I do not always have to move from 1 to 5 to be in a healthy place. Any of you dealing with daily pain of some sort are in the same boat as me. Don't feel the need to be like everybody else and make it to the acceptance stage as quickly as possible. For those of you with lifelong issues like migraines, the acceptance stage is neverending. You will never fully move past your pain, because it is part of your daily life, whether you actually feel the pain daily or not. Having a lifelong problem is scary. There will be times when you think you cannot make it any further in your journey. That, you are just going to have to accept. You will not always be happy, but then again, nobody is happy 100% of the time. Honestly, you might never be happy even 50% of the time, but it does not matter how often or how long you are happy. Only the quality of your happiness is important.
"Remember you're the one who can fill the world with sunshine." -Snow White
I have faith in you. You are strong enough to make it through your life just the way it is. This is a fact. God does not give you things you cannot handle, but you must choose to fight. You are strong enough, but I could never convince you of that. You have to convince yourself that you are strong enough to make it through every single moment of your life. Never forget that you are never alone.
"Promise me you'll always remember you're braver than you believe, stronger than you seem, and smarter than you think." -Winnie the Pooh
Love always,
Sierra

The Future

Sorry for the ominous title but I couldn't help myself... ;) Most of us spend too much time in our lives thinking about the future instead of enjoying the present, and I am no exception. Part of having a headache every day is learning how to manage and balance everything in your life. I have an endless list of things that I want to do. I have plans for my future- near and far. I want to become a doctor, a fun doctor, that kids enjoy seeing. I don't want kids to enjoy seeing me because it will make me feel good, but because it will make their experience in the hospital a bearable one instead of a traumatic one. I want to be "the doctor who prays with you" in the hospital that I end up working in. I want to enjoy my time at college in every way possible, from my roommate to my campus experience. I want to own horses and 20 dogs, all rescued from the shelter. I want to own cats, even though I am allergic to them, that will live outside in the barn eating the mice that appear. I want to be a wife, mother, grandmother, and great grandmother before I die... I could go on forever. These are all daydreams that I escape to when I'm lying in bed at night, waiting to fall asleep. I'm sure each of you has your own daydreams that you escape to, and they are wonderful, am I right?!! I don't know about all of you, but often times when I am daydreaming, I hear a little voice in the back of my head telling me it's not possible. A part of me is tired of reaching for the stars and falling short. When high school ended, I saw brighter days in my near future. So far, I have not had many bright days. The majority of my summer has been spent lying around with an ice pack on my head. Some of you know exactly what that feels like, the feeling of helplessness as you hope and hope for better days that seem to never come. You don't have to have headaches to feel that way. People feel helpless because of multiple reasons: a job they hate but need, an abusive relationship, the loss of a loved one, a disability... Feeling trapped is one of the worst feelings in the world, and sometimes, it cannot be helped. In those situations, we look for someone to blame, even if one cannot be found. We spend time and energy fighting tooth and nail when we should be surrendering. Surrender is seen as failure because of all the war our world has seen. In war, surrender is the last option, even though it could save lives. In war, surrendering IS failing. In life, surrendering is winning, if you do it correctly. I am in no way telling you to surrender to your hardship. Keep on fighting with all of your heart. All that I suggest is fighting with the strongest ally by your side. When you surrender, you reveal your weaknesses. When you surrender to God, He compliments your weaknesses. Where you are weak, He is strong. He will fight with you, for you. When you stumble and fall, He has your back. It is easy to forget just how powerful God is. I know I forget, and even doubt it, but God always reminds me of His power. Right now, I am reminding you. God is your ally, one whose strength is never failing, who will never betray you and always love you, who will protect you and guide you. He is there.
"If you listen carefully to what he says and do all that I say, I will be an enemy to your enemies and will oppose those who oppose you."
Exodus 23:22
Love always,
Sierra

Perspective Isn't Everything

It has been too long since I posted, but I have had a crappy couple of days... I forgot that the week after being in the hospital is almost worse than actually being in the hospital. While I was in the hospital, I was expected to be in bed for most of the time, so I was more comfortable with just sitting and doing nothing while others were working around me. Since I've been home, I have not had much energy at all, but the rest of my family is still busy with work, chores, and life. While they have been cleaning, roofing (yes roofing, we are remodeling the patio), and hanging out with friends, I have been sitting doing nothing. It is nice to get out of doing the work, but at the same time, I feel guilty that I haven't been able to help. Last night was a low point emotionally for me, because I missed out on something other than cleaning. At 9:15 last night, my sister and her friend spontaneously decided to have a sleepover, so at 9:30, her friend was suddenly at my house. I LOVE spontaneous sleepovers! Usually when one of my sisters and I has friends over for a sleepover, we all get to hang out and stay up late together. Last night, I didn't get to hang out with them. When her friend came over, I was in bed... When I think about it, I am not actually all that disappointed that I didn't get to stay up late with our friend. I am actually disappointed because this is the summer of my freedom. My sisters have to start school in a few weeks, and I have two whole months left! Summer! Summer is staying up late watching chick flicks with your best friends, having pool parties and cupcake baking days, going on dates with your boyfriend, and having as much fun as possible. My summer is different than that though, and I hate that. I hate that I was in the hospital last week instead of hanging out with my friends. I hate that I am probably going to have to miss my best friend's birthday party this weekend because I will be exhausted. I hate that I have to go to bed early because I don't want to be awake and in pain anymore. Sometimes, I even feel like I hate God. After I am done saying everything that I hate about my life right now, (which I do too often), I tell myself to stop complaining because "it could be worse." I could have been in the hospital getting a cancer treatment instead of a migraine treatment. I could have had a seizure and almost died. I could have had this or that or this or... Yes. My life could be worse. I have realized that thinking "it could be worse" does not make me feel better at all, because I can't imagine being in a worse situation than the one I'm in right now. That is not because my situation is hell, but because I'm human. It is hard to accept the fact that sometimes, you just have to bear the pain. I do not get angry with God for the pain, but for my inability to affect the pain. I get angry that I am forced to accept the fact that I am in daily pain. In those times, it is hard for me to turn to God on my own, so God sends me a reminder. Sometimes it feels like I have a "Reminder" app on my phone that God controls, because when I have lost my way, someone finds me and leads me to God. The other day, my head was very bad, and I was frustrated. Then, I saw an email from my grandma saying that she bought me a book that she thought I would enjoy and that will deepen my understanding of God, and realized that I should pray to God. I thanked God for the reminder and asked him for help with my pain, and I felt a little better. For me, a little better is good enough.
Thinking that life could be worse shouldn't lift your burdens, and don't let anybody else tell you differently. Sometimes, burdens cannot be lifted, and you have to learn to carry the burden, no matter how much you don't want to. My goal is to bear pain skillfully, not to pretend that it is not there. One of the ways I bear the pain is by distracting myself, by watching Supernatural or RomComs or action movies or whatsoever. Just because I spend time with these distractions does not mean that their content influences my life in a negative way. Also, just because you do not have headaches every day does not mean that you don't deserve distractions as well. Don't use the excuse of "my life could be worse" to keep persevering when your hope and energy is expunged. That is no way to live. Everybody needs their own distractions and breaks from the hard parts of life, and doing so does not make you weak in any way, it just proves that you're human. Sometimes, being human sucks, but other times, you get to have sleepovers and pool parties. My party time will come in time, as will yours.
I have mentioned more than once that I have been watching the show Supernatural, which I am completely obsessed with by the way. At first, I felt guilty about watching it because it is a show about demons, monsters, hellhounds, and other evil things, but then in a later season, angels were introduced. So, my guilt was lifted because angels are heavenly, and therefore coincide with my faith. But, the show still includes demons and implies that God does not care about humanity and that angels are jealous of humans. So, the guilt remained. Just today actually, I realized that I do not watch Supernatural because I agree with its implications about life. I watch it and other shows and movies because of their subtle clues about humanity. Romance movies show that love is possible in ways beyond your soul mate; that before you can love another person, you first have to love yourself. Supernatural gives examples of how perspective creates compassion and empathy, not relief from pain, and America's Funniest Home Videos just makes me laugh. Everybody has to learn how to bear pain skillfully, and hopefully I can help others bear their pain whether it is like mine or not.
"Dear friend, I pray that you may enjoy good health and that all may go well with you, even as your soul is getting along well."
3 John 1:2
Love always,
Sierra

Day Six

I'm finally home!!! Well I got home earlier today and slept for a long time but now I'm awake and ready to share! My last infusion of DHE was at 6:30 this morning, and luckily I slept through most of it and didn't wake up nauseous. So when I woke up, my mom offered to get me a coffee, which I accepted of course. Then I ordered breakfast: pancakes and string cheese. By the time breakfast came, an hour later, I had gotten the PICC line removed and was just waiting for the paperwork to be discharged. Getting the tube out of my arm was a little bit uncomfortable... But cool at the same time! Now to start off, when I say "tube," the image that pops into my head is a PVC pipe. The tube in my vein was much much much smaller than that of course. So you have a visual, the tube's diameter was about 2 times smaller than that of the cords used on Apple headphones. Now here comes the cool part. You don't have nerves inside your veins, so I didn't feel the tube in my arm. All I felt was the tube pulling at the site it was inserted. It kinda stung, and was sore when she pressed gauze on it to stop it from bleeding. The cool part was that in order for the tube to come out easily, I had to hum while she was pulling it out. Sounds strange right? Well it's actually pretty cool why I needed to hum. When you breathe in, your lungs expand to let the air in, so it forms a sort of vacuum inside you. The rest of your body is then a small part of that vacuum, and sucks in as well. You can guess why I would not want the tube to be sucked back into my arm... The second the tube touched the outside air, it has the possibility to obtain germs that would then be passed right into my bloodstream if it went back inside my vein. So, humming is a way for the doctor to know for sure that I am breathing out, pushing the air out of me, forming a backwards vacuum, guiding the tube outside of my body. When I hummed, she (the doctor) gently pulled. 

When that was all done, I ate my breakfast, drank my coffee, and changed into a comfy outfit for the drive home. Usually I don't fall asleep in cars, and if I do, it's when I'm stretched all the way out in the very backseat with a blanket and pillows. Today, I slept almost the whole ride home with my head slumped over onto my arms, which were on the armrest. Then, I ate Taco Bell at home and took a nap. When I woke up, I watched more supernatural then we got Japanese food for dinner. Then I went to bed at 8:00 and woke up just a little bit ago, with enough energy to post. Then I will be sleeping some more. Even though I just sat there while I was in the hospital, I'm exhausted. I knew I would be, but I didn't realize  just how exhausted I would be. I'm mentally, physically, socially, and emotionally exhausted. I am going to have to build up my strength, because I can barely lift my laptop without being tired afterwards. Luckily, I've got nothing better to do than rest up this week, hopefully with some friends for part of the time too. 

Thank you all for your prayers, they carried me through the hospital and continue to carry me now. I think I'm gonna sleep now though.

"For everything there is a season, and a time for every matter under heaven: a time to be born, and a time to die; a time to plant, and a time to pluck up what is planted; a time to kill, and a time to heal; a time to break down, and a time to build up."

Ecclesiastes 3:1-2

Love always, 

Sierra

Day Five

Finally!!! I'm almost done. I'm getting my second to last DHE infusion right now and I'm happy that it's almost over but not happy that I'm having this. Today was kind of a sucky day... I started off feeling pretty good! Then I started going downhill in the afternoon. Half an hour into my 2:30 PM infusion, I starting having pretty bad nausea. So, I took some Tums and waited another 20 minutes... Then called and asked for some nausea rescue medicine. Somehow my request was lost in communication, so 45 minutes later I still did not have relief from the nausea. When we called to ask what was taking so long, we realized that it had never been ordered. So I got to wait another hour for medicine. In the meantime, I watched supernatural. Usually watching an interesting movie or tv show distracts me well enough for a good enough period of time. Today I was just overwhelmed with different uncomfortable feelings... But later I realized that I was being proactive beyond just supernatural. I used a technique my counselor taught me, called "cut the cord." This technique helps me when my pain is overwhelming and I can't seem to do anything but think about it, complain about it, and cry about it, all three of which make the pain worse. So, "cut the cord" is the method i use when distraction alone isn't enough. What I do is when a thought comes up that sends me down the sad I have migraines road is I acknowledge the thought, determine whether thinking about it will send me in a good or bad direction, then act accordingly. Cut the cord is the action of acknowledging then moving on. Sometimes life seems like it needs a "cut the cord" moment. The moments that you lose hope, just stop thinking about feeling hopeless. Cause the second you stop thinking about it, hope returns. That is because God is waiting for you to stop fighting your battles on your own. He is hope. He is our hope. Our only hope. God's middle name is hope. Losing hope is easy. Getting it back is the hard part... Trust me, I speak from experience. I also happen to know that the second you ask for His support, God is there. Just keep the faith. 

"When Jesus saw him lying there and learned that he had been in this condition for a long time, He asked him, 'Do you want to get well'"

John 5:6

Love always,

Sierra 

Day Four

Okay so I am in the hospital right now but I am having so much fun learning!! Yesterday afternoon, I got to talk to a medical student currently enrolled in her third year at UCSF, and I really got the inside scoop on medical school. I was afraid that med school was going to suck and be all work and no play, but the "all work" part only lasts for the first two years. After that bookwork is done comes the play! In this case, shadowing doctors and doing hands on work with patients as well as researching the field you are interested in. Also, tomorrow I get to learn how to test the cranial nerves, because she is going to come teach me! So all in all, after talking with her, I am not as scared of medical school. Today I also got to talk to a resident here at the hospital to see another point of view on the whole process of becoming a doctor. So I know that to become a doctor, you need 4 years of undergrad, 4 years of medical school, and up to 5 years of residency and possibly fellowship. Until recently, I did not know what each phase of the process looked like. Today I learned that not only do you get to do hands on learning for the past two years of med school, but for your residency, you are an MD. You do not have the authority of a fully certified MD, but you still get to see patients and act like a fully certified doctor. During your residency, you see patients and treat them how you see fit, with the approval of the doctor above you. So basically, you're a doctor without the fancy shmancy certificate saying you're certified. This came as a huge relief. Also, it is completely possible and realistic to need a break between undergrad and med school, so even if I do not come out of undergrad raring to go to med school, I can still become a doctor.
I also learned about the PA, Physician's Assistant, and its increasing prestige in the world of medicine. As a patient, the common view is to see a PA as a lesser version of a doctor because they don't have the "MD" and went through less schooling. Now with the inside scoop from a resident MD, I know that a PA is in no way lesser than a doctor. The difference is that a PA only has two years of post undergrad education, and PA's do not specialize in any way, so they could work in different departments, like Pediatric Neurology, then Oncology, then back to Pediatrics, and so on, or they could continue in one area in particular. PA's technically still have to work beneath a doctor, but they function in the clinic, hospital, home, etc. in the same manner as a doctor.
Now to how my day went today! Well, it was a hospital day made as wonderful as possible because of my amazing support system. My best friend and her mom, who is my mom's best friend, came and spent the day with my mom and I. My friend and I colored, talked, and watched Netflix, as well as playing the weekly hospital round of BINGO, and my mom got to get out of the hospital for a little bit. It is almost harder for moms to be in the hospital, because they have to watch their babies go through things babies should not have to go through. I say "babies" because in a mom's eyes, we never grow up. We are always their babies. Which, I guess is fine, embarrassing, but at the same time comforting. It has been wonderful having my mom with me here in the hospital because moms always make you feel better. Granted, I have felt a lot better yesterday and today rather than Tuesday, but I have still had my tight spots. My head has been up and down and my nausea level is increasing a little bit, but all is being handled as best as is possible. I am exhausted yet again tonight, and very much ready to go home... but only two more days. Well, one and a half... but two more days until I get home, considering it takes almost three hours to get home. Moving on now...
Sorry again if this information bores you, so I do not mind one bit if you just skimmed through my first two paragraphs, but here comes the fun part. We have free will. Yes, God has a plan for us and He knows which paths we are going to choose, but we do not choose those paths because He planned for us to do so. He knows the past, current, and future plans that we choose because He sees our hearts. He knows the obstacles that will come at us as well as the things that will help us, and He knows how we will react based on our character. So, yes, God has planned out what your life will look like. But that is not because He chose for you. That is what free will is. It is what gives us the ability to choose between a doctor and a PA for our future jobs, the choice to go to the hospital or not, the choice to go to parties and have fun or stay home and study, and He does not judge us either way. This is another thing that is comforting to me, because it proves God's love for us. If it hadn't already been proven to you by Jesus' death and resurrection, the Bible, miracles, etc., then God's love can be proven in our right to free will. God willingly gives us our will. We never have to fight him, because He backs us up no matter what choice we make. This is because his love is everlasting and unconditional. It is unfathomable to our human minds just how deep his love is. Don't try to understand it or make it logical, because that isn't the point. I am a total science geek, so like aliens, sure they can exist, but I won't believe that they do until I see lots of hard evidence, but that is just not how God works. A relationship with God is built entirely on faith. Faith is believing in something when all the evidence points against it. It is a gut instinct that some people try to bury because it is illogical. I don't know about you, but sometimes I do not trust my gut instinct, so I end up making a different decision, ultimately a wrong one. For some reason, I continue not trusting my gut instinct even though it has proven to be reliable for the most part. I do the same thing with God sometimes, I try to understand it and make it logical, but then I stop myself and remind myself that it wouldn't be faith if I could understand it. Faith is one thing you cannot force upon other people. So, I do not want to force faith in God onto you, but I do ask that you take a moment to understand that faith in God defies all logic and human understanding, and that is what makes it so darn amazing.
"Now faith is being sure of what we hope for and certain of what we do not see."
Hebrews 11:1
Love always,
Sierra

Day Three... Sorta

I clearly have gotten a bit behind in posting, but I am going to play the "hospital card" because I was exhausted last night. Being in the hospital is just plain exhausting. Even though I just lay in a bed all day, I am constantly doing something. I feel like I have talked about this before, but I am too tired to remember... which is ironic. But anyways, I am always busy. I wake up, order breakfast, and my nurse comes in to give me my morning medicine. I am usually fed, awake, and alert by 10:00, at which point my mom and I go for a walk around the hospital. We like going just around my floor exploring and watching the hospital robots move all on their own, stand on the glass floor (well I stand on it and my mom stands on the floor below it) and wave to each other, walk around the outside garden, explore another floor, and/or other activities such as these. I walk really slowly because I am tired and a little weak, so we walk for about 15-20 minutes total, not getting far and not doing much. It's nice to spice it up a bit with a new place to walk to, but we only do one at a time. There are activities going on around the Pediatrics department like the media room, art therapy, music therapy, the teen lounge, etc. but not many of them interest me enough for me to spend my energy on. Yesterday, my mom and I had company on our morning walk, because my grandparents came for a while, morning to early afternoon. It was really nice for my mom and I to have some more company. After our walk, we chatted, then I got tired, so we watched Frozen! My grandma had never seen it, so that along with my love for it made it the perfect movie to watch! They also got to stay for lunch and experience the surprisingly yummy hospital food, and then we chatted some more, and they left so I could get a massage. Unfortunately, the massage lady and I had a misunderstanding so she didn't show up when I was expecting her, and while I was waiting, I took a nap. Even though I didn't fully fall asleep, that rest time really helped me get through the rest of the day. I fell asleep as I was waiting for my boyfriend to come, and I slept past the time he got here, but luckily he is sweet and patient and my mom kept him occupied giving him a tour of the floor. I woke up and started pushing the button to raise my bed into a sitting position, and saw him and my mom peek through the window in my door. I guess they had come by a few other times, peeking in when I was asleep... but oh well I needed the nap. So for the rest of the afternoon, I watched movies with him and my mom, went on our usual afternoon walk or two, and had dinner with him. After dinner, we went for a walk just the two of us before he had to leave, and that fifteen minutes was the best part of my week so far. It never ceases to amaze me how just being next to him makes me feel better. Every time I stop and think about that, I thank God for him. I don't know where I would be without him... but I definitely would not be this happy. Somehow, my headaches drew us together, and no matter how life ends up, I am thankful that I have him now.
Now that I have started down this path of thankfulness, I must venture on. Through my headaches, I have met and become close with people who otherwise would never have been as big of a part or even a part of my lives otherwise. This is another way that God makes good out of bad. Like I've said before, I don't think God chooses to give certain people bad things. Satan gives bad to everybody, and God uses His power to only allow the amount of suffering that you can handle. When people hear about my migraines, I often get the response of "wow that all sucks but to have to be dealing with it at 17... that's just worse." I don't really agree with that though, because God has a plan for me. I have big goals. All of the data from all the other girls who have started getting migraines around the same age I did, when they get past the puberty stage into early 20's, the migraines die down and become much more manageable. So, with my big goals in mind, and also thinking of the big picture of my life, now is the best time for me to have a headache every day. God gave me the courage, passion, drive, all the qualities I needed to succeed in high school, because I have succeeded. I am going to my college. The college I want to go to. All because God has blessed me with the personality to make it through this time as well as the support system I need to compliment my personality. I am forever grateful for those who have prayed for me, are praying for me, and will continue praying for me. People I don't even know personally are praying for me, and I find that amazing. The only reason I have so many people praying for me is because of my immediate support system. My church is wonderful, in the members as well as the symbol. MCC (Our church name) = Mission. Christ. Community. All three of which I need, all three of which I have. I have the mission to someday become a doctor and impact peoples lives in the same way my doctors have in mine. I have Christ in my heart, my family, my world. Last and definitely not least, I have community. I have community in my family, who all pray for me, and ask their friends to pray for me as well. I have community in my friends, who have neverending support, love, and patience for me. I even have community in this hospital. God has handpicked each and every nurse that has been here for me, and every single one of them has been fabulous. Yes, I am currently in the hospital with a tube in my arm giving me medicine that makes me feel icky, but it is only temporary. Good things will come. Never forget that. Good things will always come.
"'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future.'" Jeremiah 29:11
Love always,
Sierra

Day Two

So today was not as easy as yesterday... it all started last night. At 10:30 PM I got another dose of DHE, and at about midnight my chest started to feel uncomfortable, like there was a big weight pressing on my chest. I called my nurse in, and she checked my vitals, all of which were normal, then messaged the doctor on staff for the night. The doctor told her to pause the DHE until she came up to assess me, so it was paused for about 20 minutes. In that 20 minutes, my chest started to feel better, so the doctors agreed that the pressure and pain I felt was just my body having a completely healthy reaction to the DHE. They also said that the uncomfortable feeling should go away as my body gets more and more used to the DHE, which so far has been the case. While I have had some slight pressure during my two infusions so far today, it has not come near to the level it was at last night. Today I have also had a bit more trouble with the nausea. I have figured out that my stomach gets upset during the infusion and lasts for about half an hour afterwards as well. So, I took some tums and it is better now, so far at least...
Mostly though, my problem was with my head. It is ironic, but the DHE infusions can also induce a headache, or in my case, worsen a headache. Since my headaches are bad all on their own, today my pain level has been at a consistent 8, reaching a 9 multiple times. I could have taken medicine for it, but I did not want to. I don't like the feeling that the medicine gives me... I get woozy, weak, my head feels fuzzy, and I sleep for hours. I did not want to give in today in case tomorrow is even worse. One of the tricks with getting the best possible outcome from the treatment is taking care of me in the meantime. Even though I am used to just dealing with the nausea or pain, I should treat either or both in order for the DHE to work its magic properly. So, with that in mind, we are going to assess my headaches tomorrow and if they still are not better, I will be treated with the sleepy medicine. I am praying that it gets better tomorrow though, and I appreciate your prayers as well.
Sorry for all the technical sounding stuff if you don't find it interesting... Personally, I find it all fascinating! So fair warning, here comes a lesson type explanation of DHE, what it does and how it helps. One of the side effects is leg cramps, and it happens because of what the DHE does to my body. The DHE works for migraines because it constricts your blood vessels. Part of what causes migraines is the overload of nerve activity, which comes hand in hand with the blood pumping incorrectly. I'm not sure exactly how the blood vessels in my brain are working incorrectly, but I am guessing that it is because my blood vessels are overactive and that the blood pumps too quickly all throughout my brain. So, DHE constricts my blood vessels, guiding the blood to pump more regularly, therefore decreasing the nerve endings, then decreasing the pain. While it is amazing that it works so well to fix the blood vessels in my head, the rest of the blood vessels in my body are working perfectly 24/7. Unfortunately, the only way for me to get the infusion is for the DHE to pass all the way through my body, flowing from the PICC line into my heart, then down to my feet and hands and up to the tippy top of my head. When blood vessels constrict, blood clots become more likely. A blood clot is a small area in a blood vessel in which the blood starts to coagulate, kind of like when you get a cut and the blood dries on top of your skin, keeping any more blood from seeping out. Blood vessels are supposed to be able to move blood all around your body without any sort of hindrance, so blood clots are potentially very dangerous. Because of this, I take certain precautions. I move my arms even when I am sitting down watching a movie, to get a drink of water, color, text, etc., but I move my legs hardly at all when I am sitting down. Since my arms are moving often enough, the blood keeps flowing normally. If I just sat on my butt and watched movies all day, my leg muscles and blood vessels could cramp up so much that blood clots could form. It is still possible for me to get blood clots whether I go for walks or not, but it is much less likely for them to form if I go for a walk a few times a day. I don't have a lot of energy, so typically I just walk around my floor, go down the elevator to the garden, or explore another floor. I have not been on a walk longer than fifteen minutes at a time and probably will not be up to more than that much until a few weeks after I get home.
I am sharing this information because I have wonderful friends and family out there who want to know how I am doing. I am also sharing for anybody who might someday need a DHE treatment, be interested in neurology, or are just nerds like yours truly. I cannot explain any further why I am sharing, because I truly don't know any reasons beyond those. The only other reason I have is that God is telling me to share my story. I pray that He will be able to use my suffering to help others, whether they have a similar burden or not.
"Do your best to present yourself to God as one approved, a worker who has no need to be ashamed, rightly handling the word of truth."
2 Timothy 2:15
Love always,
Sierra

Day One

Well, I have officially started my treatment! One round of DHE is done and over with, and bearable as well. So far, not too much nausea, nothing I can't handle ;). The PICC line was seamlessly inserted by the same doctor who gave me my picc line last time! (we'll call her Dr. Picc) She remembered me, which I find amazing. Each of her work days is full of many different children, yet she still remembered me, from 6 months ago. She was my first glimpse of God in this hospital. It only took about 15 minutes to get my room assignment and go up to my floor on the elevator, and the first face I see in the halls is Dr. Picc. She saw me and stopped me to say oh hi! I remember you! I put your picc in in January. I'll see you soon!
As I have said in the past, I find the PICC line fascinating. The very first step is cleaning my whole upper left arm with antibacterial fluids and a sterile sponge and putting numbing cream on a small area of my arm. After about half an hour, Dr. Picc came back in to finish the process. The long process was started with her measuring the length from the crook of my elbow to the tip of my shoulder, then from the tip of my shoulder down to just above my sternum on the left side. This length is the length she cut the tube (that goes inside my vein) to be. Then, she looked at the vein with an ultrasound machine to make sure my vein didn't have any problems. I got to see my vein on the ultrasound machine!! It was so cool! Then comes a lot more sterilizing my arm, including using sterile gloves, gowns, towels, coverings, masks, hair nets... Throughout the rest of the process, half of my body was covered in blue sterile cloths, and every single object she used, down to the needle caps, was sterile. There was a hole just big enough to see my arm on the place the picc was going to be inserted. While looking at my vein on the ultrasound, Dr. Picc gave me a shot of lidocaine, all around the vein in my left upper arm. The lidocaine hurt... but not a lot and not for very long. After numbing the area, she poked my arm with a needle, still looking at my vein on the ultrasound. I watched the screen of the ultrasound, and watched as well as felt her poke into my vein with the needle. That also hurt, but just like a small pinch inside my arm. Then, a very thin wire was put into my vein through the needle. The wire is used to guide the tube into my vein, then once the tube is placed correctly, the wire is removed. In order to fit the tube into my arm, she needed to cut my skin a little bit. Before she made the small cut, she put a little more lidocaine in my arm. I honestly did not feel her cut my skin, which means the lidocaine did its job well. After the cut, the tube fit into my arm. Dr. Picc asked me to turn my head to the left and look down. I did this to help her guide the tube down the right pathway of veins. The proper placing of the tube is up through my shoulder then down near my heart. Sometimes, the tube takes a wrong turn and goes up into the neck. This is not a problem until fluids and medicines are introduced, so after the tube was all the way in my arm, Dr. Picc used the ultrasound again to look at the vein in my neck and make sure the tube wasn't up there. Mine wasn't, so she finished the process by putting the IV connections in place and taping everything in place. Just to make sure the tube was in the right spot in my chest, I got a chest X-Ray. Everything was set up and ready, IV fluids included, by 1:00.
Considering we woke up at 5:15 this morning, rode in the car for almost 3 hours, and have been busy in the hospital all day, my mom and I are exhausted. We continue seeing God in people, places, and even the technology that we have come in contact with. So far, my mom and I have met two tech guys, one of whom was from Ireland and the other had a similar accent, that we chatted with. Both of my nurses are smiley, chatty, and very kind. I have seen a few doctors who came around to introduce themselves and ask if I needed anything. I also had my first doctors rounds today. Every day around the same time, this week 3:00 PM, my neurologist enters my room with a trail of ducklings watching her every move. I am at a UC hospital, which means it is a teaching hospital, so there are lots of residents along with the doctors throughout the hospital. A team of about seven people will come by my room every day to see how I am doing. Today was more of a "hello" than anything, since I had only just started DHE when they came. Tomorrow, they will ask me questions about how my nausea, headache, leg cramps, etc. have been doing and what medicines I take to manage them. My neurologist mentioned to the group that I am going to UC Davis and when I told them I am majoring in Human Development, their faces all lit up with excitement for me. That is a very reassuring sign. My neurologist even commented that she hopes someday I will be back in this hospital working with her in Pediatrics.. another moment of God.
Now, I am going to relax, watch Supernatural, and drink my vanilla malt. I will get one more dosage of DHE tonight, at 10:30, then I am planning on going to bed. I really appreciate all of your prayers, support, and love.
“For I was hungry and you gave me food, I was thirsty and you gave me drink, I was a stranger and you welcomed me,  I was naked and you clothed me, I was sick and you visited me, I was in prison and you came to me.’  Then the righteous will answer him, saying, ‘Lord, when did we see you hungry and feed you, or thirsty and give you drink? 38 And when did we see you a stranger and welcome you, or naked and clothe you?  And when did we see you sick or in prison and visit you?’  And the King will answer them, ‘Truly, I say to you, as you did it to one of the least of these my brothers, you did it to me.” Matthew 25:35-40
Love always,
Sierra